It has been almost a week since our little Brayleigh was able to come home. As the nurse wheeled her out towards the front doors of the hospital, I couldn't help but feel mixed emotions - sheer joy and gratitude along with trepidation and a sense of doubt (not knowing exactly how our lives would change). After spending 19 days in the NICU, we were beyond speechless, though, at Brayleigh's readiness to leave the security of her around-the-clock medical staff to be with mom, dad and big sister, Courtlyn full time. Around all of the excitement over bringing our baby home, we ultimately knew that life with a medically fragile baby would certainly brings its challenges, such as learning how to use new equipment, making sure she is getting enough oxygen and providing her milk through a feeding tube. We have a wonderful nurse that comes in a couple of times a week for extra support, and of course, we have a number of pediatricians and specialists that we'll have to frequent over the coming months.
As with any new parent, Chris and I are definitely sleep deprived, physically exhausted and emotionally drained but we continue to be inspired by a tough little girl who, like any baby, just wants to be held, comforted and loved. Only God knows what Brayleigh's story will ultimately look like, but for now she is but a miracle that has changed our lives and strengthened our faith forever.
"When you arise in the morning, think of what a precious privilege it is to be alive - to breathe, to think, to enjoy to love." Marcus Aurelius
Brayleigh is such a great example of how "man" may try to put limits on your life, but with God, He is able to help you surpass those limits. I'm so glad you are home Brayleigh.
ReplyDeleteAlthough it may not be easy caring for a medically fragile child, in addition to everything else you have going on, but you and Chris are doing an amazing job. I will continue to pray for you and your family. Love Auntie Angela